In some corners of the internet — and even in some doctor’s offices — Sjögren’s is viewed as a “nuisance disease.” In other corners of the web, you’ll see Sjögren’s stories that will scare the bediddles out of you.
Indeed, those who suffer the most debilitating effects tend to be the stories you hear about. After all, folks with really mild effects might be looking for information, but they’re not going to be posting as often on forums and groups seeking support. And so that means you can scare yourself if you’re newly diagnosed and you’re seeking information about Sjögren’s — you might start to feel like your life is over!
Hold up. Take a deep breath. Take a step back. You’re probably reading the “worst of the worst” stories, but that does NOT mean that your Sjögren’s is going to turn out the exact same way. You might have mild effects all your life, you may have a slowly progressing disease, or you might have Sjögren’s that hits you like a ton of bricks. Sjögren’s is different for everyone. Get yourself to your rheumatologist — that’s your best bet when it comes to slowing the progression down.
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